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First Giving? The Possibility to Make This Cause Known FAR exceed what i do alone...!

What is Firstgiving? from Firstgiving on Vimeo.

`1 in 5 people due to autopsys have pituitary tumors.`

I enjoy wire wrapping beads, pendants, a little of just about anything. Everyone especially seems to enjoy the bookmarks, Actually i enjoy making the pieces used to make jewelry more than a whole piece :). Accent beads, charms, anything someone would like to add to their jewelry yet do not have time to or do not care about learning how to make those extra's, but like to use them with what they make . I sell some here and there & put into making cards to give out so that you will have all the information needed to be Fully Aware of these tumors.

The Truth verses Many well meaning but unqulified in the public and medical community can determine life or death determining any medical attention you may need or get. I know all to well i'm treading on controversal ground, but with what i've experienced concerning medical advice, the 2 years and hundreds of hours of research, flew Twice to a Duke dr. in NC, and have been in 4 states altogether, Please Know, i do Not sit here and rehash this because i enjoy it. Knowledge is power and if One person did Not have to walk down this 7 yr journey as i have but could go right to the correct doctor, rule out these tumors, along With having all endoctrinal issues ruled out or either went to the right doctor with `Knowledge` of this & Open to treatment. "Before" your whole body has been affected; I'll shout it from the rooftops! The truth for me is, If i never had to speak of it again it would be a Joy!

With Any health issue, Please do your own research, do not take anyone's advice until you are satisfied it is correct. (Do not take my advice, search for yourself!) Many people are misdiagnosed, constantly finding themselves in the Psy. unit and on so many meds for Years, yet still wondering why nothing works & still yet changing meds. Think twice friends, I've Been down that road, & thats been over 24 yrs ago. Its a much different game now, beware of Anyone, Dr. Nurse, etc...who says they diagnos you as this or that within the first visit! (the going diagnosis now is Bi-Polar!) I hope you remember that, i know bi-polar when i see it & when i Don't. Be Very aware if you go to an ER for something Other than to admit yourself to a psy. unit and someone trys to get you on their psy. floor!!! This is Not proper protocol, Nor is anything other than a Dr. asking you if you think about hurting yourself or someone else, and do you think you need to stay with us a few days or want to try going home??? This is Without Any feeling of them wanting you to or not. I've got a `chilling` story concerning this during an ER visit in March 2010 with heart palpitations that could have turned deadly had i taken this advice. Its posted in one of my posts below. There's a very good article out about Psy. issues and Medical issues concerning medical problems overlooked as being 'only' psychological. Never take a psy. "Diagnosis" before having your thyroid checked and all endroctrinal issue's. What are your syptoms first? Do a quick search online and see Other medical issues that have the same symptoms.

I'm considering making a First Giving Fundraising Page for the `Pituitary Network Association` as they Are Non Profit. They also have been my main source of information in the past years. They started in 1992. That Really hits home just How Little the public & Medical Field know about these tumors. So many have some very Major health issues including myself even though the drs. and specialist will deny it to the end.

My life has been changed so drastically that i do not remember what `Normal` was like. But, i do have an advantage, God lets Nothing happen concerning myself that is not to bring `GOOD` out of Pain. And for that i am so Very thankful!

Note- I tend to repeat myself Alot now, so please overlook it, many times even re-reading i may not catch something written more than once. Some posts just will not make much sense, and looks like i'm just all over the place from one thought to another then back again. This is just Part of it! :)

To Support The `PITUITARY NETWORK ASSOCIATION` directly please go to their website. http://www.pituitary.org/. this is also where i found the best and most complete info in words understandable to the layperson. with Love and the blessings of God` Cj

Showing posts with label Harmones. Show all posts
Showing posts with label Harmones. Show all posts

Tuesday, September 29, 2009

Numb After Fridays Edno visit-But Still New Things coming At Me*

IT sometimes takes me a few days to get over yet another bad experience with a doctor. Endo. The one at Duke said i needed treatment; this one says not.

While making an appointment to see my MD, i asked to speak to his nurse. Hope you are sitting down... She told me she was from Dallas and all she did was assist surgeons in removing Pituitary Tumors! ITs worth a try. I'm going to call the doctors she gave me there and see if they will look at 3 mri's and Dukes (treatment) and let me know if its worth me flying there or somewhere closer to home they would recommend. I cant fly that far Unless is a for sure thing they think they need to be removed.

Yesterday i called a well know and suggested by my neighbeor who see's this OBGYN for harmones, i told them about he tumors, then she called me back, wanting to see all my medical records.

Is this going to be the catch 22??? HE is known for compassion and quality over quantity of life and will give harmones. IF he needs to see med records before deciding to see me or not, its going to be because its probabbly not in his best interset to give harmones not knowing what the tumors are doing or going to do. My hubby said, you shouldn't have told her. I'm not Making anymore trips hours away only to be told no. They need to know upfront.


IF there's nothing to these tumors, (and i know better) then why do they keep taking bloodwork to see if you have the growth harmone active etc  etc etc???? Just a little commone sense. Oh...by the way, the nurse in the endo on fri. said "dont worry about it, theres nothing to them. We see them ALL THE TIME!  Yeah, i bet they do since 1 in 5 have them.

I look back over my writing and i hope you can sift through it. i'm not in a hurry, maybe my mind goes faster than my fingers.:)

I know very few will read this, so i basically am talking to myself and keeping up with this as i can. Only am i doing this online so that if someone comes across it, it may help them. I wouldn't wish this along with menapause on my worst enemy.

Keeping the Faith!
Cj
Posted by Cj at Tuesday, September 29, 2009 0 comments
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Tuesday, September 15, 2009

Pituitary Tumors, How Many Have Suffered For Years Misdiagnosed?

PLEASE TAKE A FEW MINUTES AND MAKE YOURSELF `AWARE` 1 IN 5 PEOPLE HAVE A PITUITARY TUMOR.

 I AM ONE OF THEM.

Note-(1 IN 4 WOMEN HAVE BREAST CANCER.) THESE TUMORS ARE SOMEWHAT A NEW FIELD OF MEDICINE. Or is it Really! I'm not so convinced right now. I'D NEVER HEARD OF THEM BEFORE, BUT THEY ARE NOT TO BE PLAYED AROUND WITH ANYMORE THAN BREAST CANCER. 99.9% OF THEM ARE NON CANCEROUS, BUT COULD THERE BE A LINK BETWEEN THESE TWO??? HARMONES AFFECT EVERY PART OF YOUR BODY.
FOR YEARS PEOPLE SPEND A LIFETIME GOING FROM DOCTOR TO DOCTOR SUFFERING AND EITHER ARE MISDIAGNOSED OR ONLY TO BE SENT TO A PSYCHIATRIST. THEY WILL TELL YOU THERE IS NOTHING WRONG WITH YOU, ITS ALL IN YOUR HEAD. `THAT PART IS RIGHT!` THE TUMORS IN MY HEAD ARE REAL AND CAUSING ALL KINDS OF SYMPTOMS LEAVING ME HOUSEBOUND. BUT NOT FOR LONG. I'VE DONE MY RESEARCH AND WILL BE GETTING TREATMENT WITHIN A COUPLE OF WEEKS. THIS HAS GONE ON FOR 3 YEARS, I'M EXHAUSTED.

IF 1 IN 5 PEOPLE HAVE THESE TUMORS, WHY HAVE WE NEVER HEARD OF THEM? THIS HAS BEEN PROVEN THROUGH AUTOPSYS. DOCTORS `
SUPPOSEDLY`ARE NOT TAUGHT ABOUT THEM FOR THE MOST PART.
I'VE BEEN IN 3 STATES LOOKING FOR THE RIGHT KIND OF HELP. IT LOOKS LIKE DUKE HAS A THUMBS UP ON THIS. THEY DIAGNOSED MY FIRST TUMOR AROUND 2004.
I WILL DO EVERYTHING I CAN POSSIBLY DO TO PASS ON PITUITARY AWARENESS UNTIL THE SILVER RIBBON IS AS MUCH A PART OF AWARENESS FOR THESE TUMORS AS IS THE
PINK RIBBON IS TO BREAST CANCER.
BY READING THIS YOU `MAY` SAVE A LIFE, AND IT COULD BE YOUR OWN!

IF YOU HAVE THYROID PROBLEMS. GET AN MRI!YOU WIL FIND SYMPTOMS AT `THE PITUITARY NETWORK ASSOCIATION` WEBSITE LINK BELOW.
WHAT IF WHEN ONLY A FEW PEOPLE FIRST BECAME AWARE OF BREAST CANCER THEY DID NOTHING TO INFORM OTHERS??? ITS GOT TO START SOMEWHERE!
PLEASE READ THE LINKS BELOW,ESPECIALLY "SHORT BUT POWERFUL INFORMATION". IT WILL TAKE ONLY A FEW MINUTES AND THEN PASS IT ON TO YOUR FRIENDS AND FAMILY. (THIS IS A REAL EYE OPENER)  
ASK THEM TO KEEP IT GOING UNTIL PITUITARY TUMORS ARE RECOGNIZED AS SERIOUS OF A DANGER TO YOUR LIFE AS BREAST CANCER IS.

***Think about this. After a certian age women are told to have a mamagram every year. Now i'm considering 1 in every 4 women have breast cancer and this is why. That being the case, should not everyone at Least by 35 or 40 have an MRI every 2 years until menapause??? It just makes good common sense to me!***
***SHORT BUT POWERFUL INFORMATION***
THE MAIN SITE
http://www.pituitary.org/

Please feel free to contact me.

I am just about positive i will know this week what kind of treatment will be used and if i have to fly to NC. This blog is also where i'll post my treatment,so check back when you can! I love getting messages :). I did re-read this and edit as best i could. My writing ability for someone to be able to follow is greatly lacking right now. Just overlook what dosent make sense and know i tried :)
With Love,`Cj
pituitarytumor_awareness@yahoo.com
May the Lord Bless You and Keep You!
Cj
Posted by Cj at Tuesday, September 15, 2009 2 comments
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