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First Giving? The Possibility to Make This Cause Known FAR exceed what i do alone...!

What is Firstgiving? from Firstgiving on Vimeo.

`1 in 5 people due to autopsys have pituitary tumors.`

I enjoy wire wrapping beads, pendants, a little of just about anything. Everyone especially seems to enjoy the bookmarks, Actually i enjoy making the pieces used to make jewelry more than a whole piece :). Accent beads, charms, anything someone would like to add to their jewelry yet do not have time to or do not care about learning how to make those extra's, but like to use them with what they make . I sell some here and there & put into making cards to give out so that you will have all the information needed to be Fully Aware of these tumors.

The Truth verses Many well meaning but unqulified in the public and medical community can determine life or death determining any medical attention you may need or get. I know all to well i'm treading on controversal ground, but with what i've experienced concerning medical advice, the 2 years and hundreds of hours of research, flew Twice to a Duke dr. in NC, and have been in 4 states altogether, Please Know, i do Not sit here and rehash this because i enjoy it. Knowledge is power and if One person did Not have to walk down this 7 yr journey as i have but could go right to the correct doctor, rule out these tumors, along With having all endoctrinal issues ruled out or either went to the right doctor with `Knowledge` of this & Open to treatment. "Before" your whole body has been affected; I'll shout it from the rooftops! The truth for me is, If i never had to speak of it again it would be a Joy!

With Any health issue, Please do your own research, do not take anyone's advice until you are satisfied it is correct. (Do not take my advice, search for yourself!) Many people are misdiagnosed, constantly finding themselves in the Psy. unit and on so many meds for Years, yet still wondering why nothing works & still yet changing meds. Think twice friends, I've Been down that road, & thats been over 24 yrs ago. Its a much different game now, beware of Anyone, Dr. Nurse, etc...who says they diagnos you as this or that within the first visit! (the going diagnosis now is Bi-Polar!) I hope you remember that, i know bi-polar when i see it & when i Don't. Be Very aware if you go to an ER for something Other than to admit yourself to a psy. unit and someone trys to get you on their psy. floor!!! This is Not proper protocol, Nor is anything other than a Dr. asking you if you think about hurting yourself or someone else, and do you think you need to stay with us a few days or want to try going home??? This is Without Any feeling of them wanting you to or not. I've got a `chilling` story concerning this during an ER visit in March 2010 with heart palpitations that could have turned deadly had i taken this advice. Its posted in one of my posts below. There's a very good article out about Psy. issues and Medical issues concerning medical problems overlooked as being 'only' psychological. Never take a psy. "Diagnosis" before having your thyroid checked and all endroctrinal issue's. What are your syptoms first? Do a quick search online and see Other medical issues that have the same symptoms.

I'm considering making a First Giving Fundraising Page for the `Pituitary Network Association` as they Are Non Profit. They also have been my main source of information in the past years. They started in 1992. That Really hits home just How Little the public & Medical Field know about these tumors. So many have some very Major health issues including myself even though the drs. and specialist will deny it to the end.

My life has been changed so drastically that i do not remember what `Normal` was like. But, i do have an advantage, God lets Nothing happen concerning myself that is not to bring `GOOD` out of Pain. And for that i am so Very thankful!

Note- I tend to repeat myself Alot now, so please overlook it, many times even re-reading i may not catch something written more than once. Some posts just will not make much sense, and looks like i'm just all over the place from one thought to another then back again. This is just Part of it! :)

To Support The `PITUITARY NETWORK ASSOCIATION` directly please go to their website. http://www.pituitary.org/. this is also where i found the best and most complete info in words understandable to the layperson. with Love and the blessings of God` Cj

Tuesday, September 8, 2009

Chantix~ PLEASE GET INFORMED!

My intententions are `Truly` to tell you my story and give you as much information as possible. Not much is known by anyone other than Phizer and those of us who have taken it. I've even had to make my doctors aware of the danger.

After making one of my doctors aware of what happened to me he studied up on Chantix. My next appointment he told me this medicine affects the `Emotional` Part of  the Brain! And, this is a VERY Dangerous place to go! Psy. meds affect the Chemicals in the brain.
An example would be if your doctor gave you something supposed to Help you, but affected your motor skills. You might not be able to move your arm no matter how hard you tried, how many times you called your doctor, or going off the med. as soon as you felt the symptom.

I took the first days pill, smoked, got up and took 2nd days pill and within seconds i felt something i've never felt before, Suicidal! And I KNOW when to call a doctor if something i've been given dosent seem right. I wasn't going to call a doctor, I Really wanted to die.

My heart palpitates 24/7. I sweat Dripping 24/7 no matter what time of the year it is. Sleep, i sleep on an average of 3 Maybe 4 nights a week and thats not just laying in bed, its staying up in a position that i can feel safe and do something that helps take my mind off of it, like making jewelry. Thats pretty much when i started making it. Yes, i have two small pituitary tumors, that may agravate the symptoms, but i'll never forget the day my life changed and i still have to think really hard to try and remember who i was. There's alot more, but as i sit here almost 2 years later as of 10/07, i have to stop; it makes my heart beat faster writing about it. I"ve still not been able to see if there are any Real studies or insight into permanent damage. If this was just stress related, That day would have been the night i got the call my little brother was killed on a motorcycle and my dad was in the hospital with a stroke then heart attack after hearing about my brother. 
There's much more to my story but will write more later. I'll leave with a few you with some links of others stories. Please post your experience good or bad. We'd love to hear from you.

***LINKS***

Forum of Chantix Users~ (Wrong Diagnosis.com Website)
I found it interesting to start at the last page of 245 posts and still posting. The symptoms are unbelievable and not going away. The posts started 10/04/06.

Bloggers Post about Their Experience on Chantix
http://doctorrw.blogspot.com/2007/11/chantix-and-suicide-whats-going-on.html

"May the Lord Bless you and Keep You"
Cj

9/18/09 what i might have failed to tell you is the 2 worst symptoms  were made Unbearable after this experience above. First Pit. tumor, Menapause, then this drug, who knows the long term side affects of This drug.  But i already had the symptoms before this drug. There will be some days my writing will make not one ounce of sense to you. I dont always go over and try to proofread, its stressful enough just writing about it. 
:)