I'm a Wife,Sister,Aunt,StepMom,Daughter & Christian. 52 years young,married to a coal miner. Jesus is our source of Strength and Joy!
I'm Also..1 of 5 people who have PITUITARY TUMORs. PLEASE TAKE TIME TO LEARN ABOUT THIS ALMOST UNKNOWN DISEASE. YOUR LIFE MAY DEPEND ON IT! .
If You have a story to share concerning this in some fashion please post it!
With Love & God's Blessings To You`
Cj
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First Giving? The Possibility to Make This Cause Known FAR exceed what i do alone...!
`1 in 5 people due to autopsys have pituitary tumors.`
I enjoy wire wrapping beads, pendants, a little of just about anything. Everyone especially seems to enjoy the bookmarks, Actually i enjoy making the pieces used to make jewelry more than a whole piece :). Accent beads, charms, anything someone would like to add to their jewelry yet do not have time to or do not care about learning how to make those extra's, but like to use them with what they make . I sell some here and there & put into making cards to give out so that you will have all the information needed to be Fully Aware of these tumors.
The Truth verses Many well meaning but unqulified in the public and medical community can determine life or death determining any medical attention you may need or get. I know all to well i'm treading on controversal ground, but with what i've experienced concerning medical advice, the 2 years and hundreds of hours of research, flew Twice to a Duke dr. in NC, and have been in 4 states altogether, Please Know, i do Not sit here and rehash this because i enjoy it. Knowledge is power and if One person did Not have to walk down this 7 yr journey as i have but could go right to the correct doctor, rule out these tumors, along With having all endoctrinal issues ruled out or either went to the right doctor with `Knowledge` of this & Open to treatment. "Before" your whole body has been affected; I'll shout it from the rooftops! The truth for me is, If i never had to speak of it again it would be a Joy!
With Any health issue, Please do your own research, do not take anyone's advice until you are satisfied it is correct. (Do not take my advice, search for yourself!) Many people are misdiagnosed, constantly finding themselves in the Psy. unit and on so many meds for Years, yet still wondering why nothing works & still yet changing meds. Think twice friends, I've Been down that road, & thats been over 24 yrs ago. Its a much different game now, beware of Anyone, Dr. Nurse, etc...who says they diagnos you as this or that within the first visit! (the going diagnosis now is Bi-Polar!) I hope you remember that, i know bi-polar when i see it & when i Don't. Be Very aware if you go to an ER for something Other than to admit yourself to a psy. unit and someone trys to get you on their psy. floor!!! This is Not proper protocol, Nor is anything other than a Dr. asking you if you think about hurting yourself or someone else, and do you think you need to stay with us a few days or want to try going home??? This is Without Any feeling of them wanting you to or not. I've got a `chilling` story concerning this during an ER visit in March 2010 with heart palpitations that could have turned deadly had i taken this advice. Its posted in one of my posts below. There's a very good article out about Psy. issues and Medical issues concerning medical problems overlooked as being 'only' psychological. Never take a psy. "Diagnosis" before having your thyroid checked and all endroctrinal issue's. What are your syptoms first? Do a quick search online and see Other medical issues that have the same symptoms.
I'm considering making a First Giving Fundraising Page for the `Pituitary Network Association` as they Are Non Profit. They also have been my main source of information in the past years. They started in 1992. That Really hits home just How Little the public & Medical Field know about these tumors. So many have some very Major health issues including myself even though the drs. and specialist will deny it to the end.
My life has been changed so drastically that i do not remember what `Normal` was like. But, i do have an advantage, God lets Nothing happen concerning myself that is not to bring `GOOD` out of Pain. And for that i am so Very thankful!
Note- I tend to repeat myself Alot now, so please overlook it, many times even re-reading i may not catch something written more than once. Some posts just will not make much sense, and looks like i'm just all over the place from one thought to another then back again. This is just Part of it! :)
To Support The `PITUITARY NETWORK ASSOCIATION` directly please go to their website. http://www.pituitary.org/. this is also where i found the best and most complete info in words understandable to the layperson. with Love and the blessings of God` Cj
WHY? Because i told him he was the end of the road, the last endo i would see, i have had all i can take with this and he Has to help me! Before doing any tests, I told him what i thought the endrocrine problems were, and he agreed. Hyperthyroidism, Adrenal Glands Being Affected (didn't say how) by the Pituitary Tumors. He seemed very confidant about this. I SURE HOPE SO BECAUSE ENOUGH IS ENOUGH. The longer you go undiagnosed the more problems, glands and even heart are damaged. That is happening in this case. I look for doors OPEN or CLOSED and i don't know yet from God. Around here you will wait 2 months at least to see a new endo. The first call my hubby made to him on a Fri. he said bring her Monday. OPEN DOOR. I could not physically go. He said bring her Wed. Same thing. He made an app. for the 9th of this month, but i was ready to see him last week, hubby called and said bring her in tomorrow. That was the 3rd of March Wed/ That is an Open door.
He did order blood work, i had some just the week before, and told him it would not show up there but i dont care how he does it Prove what we both think! I asked him for the 4 times a day Salvia test, he said they could not do it there but wished they could. I may have to buy them myself to prove what i Know is true. How do we know this? The endo at Duke in NC i asked him to do salavia test, he agreed but did not know to do it 4 times a day for several days. It gives you the readings of harmones as they change throughout the day. Anyway, talking about this is so taxing i'll be posting some about chairities and handmade items, and if you make Anything i'd love to hear about it!
I'm married to a coal miner in Western KY, 52 years young,our home consist of 2 cats who Think they rule the roost! My hubby and i have been married 23 years. We Love the Lord, and its real. It's a relationship with Him, not just something we `do`. Jesus makes it possible to be content regardless of circumstances; and yeah... my ugly side still comes out. But the Unconditional Love of God is open & waiting to be known by All His creation! We go to a little Pentecostal Church where people are `Real` & Very supportive of each other. If you have questions about this Jesus I know, feel free to email me! I believe nothing i hear until i research it for myself.
I have a tender heart, but am tough as nails- you just about cannot do anything to offend me. I can and Do Agree to disagree, Pray about Everything, and Know Everyone was created in Gods image and loved by Him!
We also enjoy working in the yard together, I enjoy decorating the yard with all kinds of perinials, anything with color. One day i'll tell you about `My Back Porch`. Its a very special place! :o)
Love~Cj
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