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First Giving? The Possibility to Make This Cause Known FAR exceed what i do alone...!

What is Firstgiving? from Firstgiving on Vimeo.

`1 in 5 people due to autopsys have pituitary tumors.`

I enjoy wire wrapping beads, pendants, a little of just about anything. Everyone especially seems to enjoy the bookmarks, Actually i enjoy making the pieces used to make jewelry more than a whole piece :). Accent beads, charms, anything someone would like to add to their jewelry yet do not have time to or do not care about learning how to make those extra's, but like to use them with what they make . I sell some here and there & put into making cards to give out so that you will have all the information needed to be Fully Aware of these tumors.

The Truth verses Many well meaning but unqulified in the public and medical community can determine life or death determining any medical attention you may need or get. I know all to well i'm treading on controversal ground, but with what i've experienced concerning medical advice, the 2 years and hundreds of hours of research, flew Twice to a Duke dr. in NC, and have been in 4 states altogether, Please Know, i do Not sit here and rehash this because i enjoy it. Knowledge is power and if One person did Not have to walk down this 7 yr journey as i have but could go right to the correct doctor, rule out these tumors, along With having all endoctrinal issues ruled out or either went to the right doctor with `Knowledge` of this & Open to treatment. "Before" your whole body has been affected; I'll shout it from the rooftops! The truth for me is, If i never had to speak of it again it would be a Joy!

With Any health issue, Please do your own research, do not take anyone's advice until you are satisfied it is correct. (Do not take my advice, search for yourself!) Many people are misdiagnosed, constantly finding themselves in the Psy. unit and on so many meds for Years, yet still wondering why nothing works & still yet changing meds. Think twice friends, I've Been down that road, & thats been over 24 yrs ago. Its a much different game now, beware of Anyone, Dr. Nurse, etc...who says they diagnos you as this or that within the first visit! (the going diagnosis now is Bi-Polar!) I hope you remember that, i know bi-polar when i see it & when i Don't. Be Very aware if you go to an ER for something Other than to admit yourself to a psy. unit and someone trys to get you on their psy. floor!!! This is Not proper protocol, Nor is anything other than a Dr. asking you if you think about hurting yourself or someone else, and do you think you need to stay with us a few days or want to try going home??? This is Without Any feeling of them wanting you to or not. I've got a `chilling` story concerning this during an ER visit in March 2010 with heart palpitations that could have turned deadly had i taken this advice. Its posted in one of my posts below. There's a very good article out about Psy. issues and Medical issues concerning medical problems overlooked as being 'only' psychological. Never take a psy. "Diagnosis" before having your thyroid checked and all endroctrinal issue's. What are your syptoms first? Do a quick search online and see Other medical issues that have the same symptoms.

I'm considering making a First Giving Fundraising Page for the `Pituitary Network Association` as they Are Non Profit. They also have been my main source of information in the past years. They started in 1992. That Really hits home just How Little the public & Medical Field know about these tumors. So many have some very Major health issues including myself even though the drs. and specialist will deny it to the end.

My life has been changed so drastically that i do not remember what `Normal` was like. But, i do have an advantage, God lets Nothing happen concerning myself that is not to bring `GOOD` out of Pain. And for that i am so Very thankful!

Note- I tend to repeat myself Alot now, so please overlook it, many times even re-reading i may not catch something written more than once. Some posts just will not make much sense, and looks like i'm just all over the place from one thought to another then back again. This is just Part of it! :)

To Support The `PITUITARY NETWORK ASSOCIATION` directly please go to their website. http://www.pituitary.org/. this is also where i found the best and most complete info in words understandable to the layperson. with Love and the blessings of God` Cj

Thursday, September 24, 2009

`Pituitary Tumor Awareness `: A Right on Time God and Glimmer of Hope

A Right on Time God and Glimmer of Hope

I'm certianly behind a few days but i'll try to update.  The endo from Duke got back with the bloodwork, and of course does not want to treat the tumors. All the nurse told me was `Ovarian  Faluire and i would need treatment. So i had her fax everything here to the endo i've Yet to see since that last MRI several months ago.The app. was not supposed to be until the 29th. I already had planned to admit myself through the ER by tomorrow, i just cannot take the constant heart palpitations and heat-sweats 24/7 any longer. About 3pm i got a call from this endo's office and she asked me if i could Please do her a favor and come in tomorrow morning at 9am! I said you bet i will, i was going to be heading that way tomorrow to be admitted one way or the other. That took the pressure off of me,Thank You Lord.
I can't believe this Duke Dr didn't even want to try and shrink the tumors-Prolactinoma. At least thats what I KNOW by what we saw, same as the first tumor in 04-05 that sent me into menapause. Ok, Please straighten me out if i'm wrong, but is ovarian failure not MENAPAUSE???? If thats All it is, i told him that i'd been menapausal for about 4 years. I'm looking forward to hearing what treatment he recommends, when you  need harmones you need Harmones! Forget the breasts for now, geez, i'm homebound. Unless he for some reason thinks the ovaries are cancerous i don't know what other treatment he may be talking about.
`QUALITY OF LIFE IS `MUCH` MORE IMPORTANT TO ME THAN QUANTITY`
It's going to be interesting to see if he says no to harmones, and i say, if there were no such thing as breast cancer, would you give them to me then??? If he says no, i don't have to ask why, but i will... it's because there are tumors on my pituitary gland!
I'm not leaving that place tomorrow and coming home with a pill to see if i can tolerate it to shrink the tumors Only and keep living like this. He will admit me (unless i'm satisfied he has given me the only thing i know that helps-it ain't gonna happen folks) but all that to say, when its gotten to this point, Anyone needs to be in a hospital where all the different doctors can be involved in a short period of time. No more waiting months for an appointment.
I know i sound sarcastic, i feel sarcastic, tired of having to do the Drs. jobs for them. but Enough is Enough! NO is NOT an option.
Just the THOUGHT of trying to remember Who i was 3 years ago and the glimmer of hope that i may find this woman again, even maybe look healthy is exciting and yet dare i even think that way yet??? YES! I have to~! If i was dying fine! But this is totally Treatable, what only a little common sense would do is go a Very Long Way with the medical community.
However i will Not give up on getting something done about these tumors. When they tell me to wait another 6 months, get an MRI bla..... I'm going to say, well....what are we waiting for???? Ahhhh.... it to maybe disappear? Keep Growing? Until i have a disease caused by these tumors, until WHAT? I asked the nurse that called me that and she said, in a sad voice, i just don't know.
Ok...that's out of my system, i know by the way i'm coming across you'd never know i absolultly KNOW without Condition that God is in Control, when this passes i will be able to help someone who is going through the same thing. I refuse to allow suffereing to be in vain, something good Will come from this.
I've listed the first Pit. Tumor Awareness Bracelet Design under `Awareness and Support Items` at the bottom of the links on the right of this page. Brain/PitTumor colors are Silver to dark gray, black. I want these to Stand Out so people will say, what does that mean? But.. its up to You who have these tumors to wear them and spread the word. The pink ribbon had to start somewhere. I love making jewelry, and am going to keep these as low cost as possible. They've first Got to be affordable to even Start to get the message out. We've got to wear them. The money is not the important thing to me, its keeping 1out 5 Other people from going through what many of us are and have.
Also i'll have some cards made up to give out, many people do that now even without a Cause, with the phone number and email. I run into people all the time who give me their cards, just a couple of weeks ago, a woman who had breast cancer gave me her card. We were both looking at Jewely and almost passed out at the prices! $40-50 for a pair of earings i know what it costs to make, so we got to talking. I wish i'd had a card then to give her. But...she Does know where to go to become Aware. A card just makes it easier than trying to find a piece of paper and pen. Simply...Pituitary Tumor Awareness! You Can Do It!
Love & Blessings*
Cj