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First Giving? The Possibility to Make This Cause Known FAR exceed what i do alone...!

What is Firstgiving? from Firstgiving on Vimeo.

`1 in 5 people due to autopsys have pituitary tumors.`

I enjoy wire wrapping beads, pendants, a little of just about anything. Everyone especially seems to enjoy the bookmarks, Actually i enjoy making the pieces used to make jewelry more than a whole piece :). Accent beads, charms, anything someone would like to add to their jewelry yet do not have time to or do not care about learning how to make those extra's, but like to use them with what they make . I sell some here and there & put into making cards to give out so that you will have all the information needed to be Fully Aware of these tumors.

The Truth verses Many well meaning but unqulified in the public and medical community can determine life or death determining any medical attention you may need or get. I know all to well i'm treading on controversal ground, but with what i've experienced concerning medical advice, the 2 years and hundreds of hours of research, flew Twice to a Duke dr. in NC, and have been in 4 states altogether, Please Know, i do Not sit here and rehash this because i enjoy it. Knowledge is power and if One person did Not have to walk down this 7 yr journey as i have but could go right to the correct doctor, rule out these tumors, along With having all endoctrinal issues ruled out or either went to the right doctor with `Knowledge` of this & Open to treatment. "Before" your whole body has been affected; I'll shout it from the rooftops! The truth for me is, If i never had to speak of it again it would be a Joy!

With Any health issue, Please do your own research, do not take anyone's advice until you are satisfied it is correct. (Do not take my advice, search for yourself!) Many people are misdiagnosed, constantly finding themselves in the Psy. unit and on so many meds for Years, yet still wondering why nothing works & still yet changing meds. Think twice friends, I've Been down that road, & thats been over 24 yrs ago. Its a much different game now, beware of Anyone, Dr. Nurse, etc...who says they diagnos you as this or that within the first visit! (the going diagnosis now is Bi-Polar!) I hope you remember that, i know bi-polar when i see it & when i Don't. Be Very aware if you go to an ER for something Other than to admit yourself to a psy. unit and someone trys to get you on their psy. floor!!! This is Not proper protocol, Nor is anything other than a Dr. asking you if you think about hurting yourself or someone else, and do you think you need to stay with us a few days or want to try going home??? This is Without Any feeling of them wanting you to or not. I've got a `chilling` story concerning this during an ER visit in March 2010 with heart palpitations that could have turned deadly had i taken this advice. Its posted in one of my posts below. There's a very good article out about Psy. issues and Medical issues concerning medical problems overlooked as being 'only' psychological. Never take a psy. "Diagnosis" before having your thyroid checked and all endroctrinal issue's. What are your syptoms first? Do a quick search online and see Other medical issues that have the same symptoms.

I'm considering making a First Giving Fundraising Page for the `Pituitary Network Association` as they Are Non Profit. They also have been my main source of information in the past years. They started in 1992. That Really hits home just How Little the public & Medical Field know about these tumors. So many have some very Major health issues including myself even though the drs. and specialist will deny it to the end.

My life has been changed so drastically that i do not remember what `Normal` was like. But, i do have an advantage, God lets Nothing happen concerning myself that is not to bring `GOOD` out of Pain. And for that i am so Very thankful!

Note- I tend to repeat myself Alot now, so please overlook it, many times even re-reading i may not catch something written more than once. Some posts just will not make much sense, and looks like i'm just all over the place from one thought to another then back again. This is just Part of it! :)

To Support The `PITUITARY NETWORK ASSOCIATION` directly please go to their website. http://www.pituitary.org/. this is also where i found the best and most complete info in words understandable to the layperson. with Love and the blessings of God` Cj

Saturday, June 5, 2010

Diagnosis Maybe!?

Last night in between reading articles on the brain-tumor site, i am writing down information such as meds, vitamins and Anything i was allergic to and have a little head start getting all the info ready in case they told me to come to Cal., they can treat me. This article was listed in neuroscience and i didn't know what that was. When i read about the symptoms of the face I knew That Very well! I looked to see if it said anything about neck pain starting in the back and if it went to 2 others places along with what was thought to be muscle spasms yet it starts off with a popping sound you can do when you are stressed there and move it from side to side Only it was popping on its own, and that didn't hurt. Sometimes it would pop and from the shoulders up would kind of Jump, Flinch as if someone had scared you. You didn't have any control or even be aware when it would happen. Sometimes the shout from the unexpected jump would be a louder and it would be right embarrassing , it might remind you of certain tics some have and the ill Sayers will most certainly jump to the conclusion you finally have lost it. Yet never having muscle spasms, i really didn't if that popping is what one would feel like, but the word Spasm didn't seem to fit the popping sound and jumping, and the muscle relaxers did nothing either. It never leaves, it is like someone who keeps a perfect schedule. Aches when you wake up and sometimes actually still hurts from the bad headache a few hours ago going to bed. as the day goes on the pain rises and goes to the jaw and when it hits the head it has No mercy, the headaches are really painful.I had 2 very terrifying reaction from a local and total anesthesia, so i Always make sure my doctors know about this. I do know that there is something that a doctor knew to leave out when i told him before my 2nd local. He knew just what to leave out, i was awake and watching, there was some discomfort but it sure kept me at ease.WHEN I'M PUT TOTALLY UNDER, THE ANESTHESIOLOGIST CAME BACK PATTED MY HAND AND SAID THIS IS THE SHOT THAT WILL TOTALLY RELAX YOU AND THEN I'LL PUT YOU TO SLEEP. SOUNDS GOOD TO ME, I DON'T LIKE THIS. I'D NEVER BEEN PUT UNDER TOTALLY EXCEPT AT 3 YEARS OLD AND HAD MY TONSILS OUT. http://www.neuroscience.newstjohns.org/Approach.aspx?id=226 http://www.neuroscience-institute.org/ SEE THIS ALSO.WELL..........AS SOON AS HE WALKED ONLY ABOUT 10 FT TO HIS SEAT, I STARTED SCREAMING UNCONTROLLABLY, MY BODY TOOK ON A LIFE I DID NOT RECOGNIZE, AND I COULD NOT TELL HIM ANYTHING! I heard him say to me as he patted my hand harder, i think 1 or 5 percent are affected like this and he had put me to sleep while talking.Then to top that off, Upon wakening, This was My first time under and My face was twitching uncontrollably, eyes it scared me so bad, and when my eyes would twitch open i had no contacts in the hallway was cold and NOBODY WAS ANYWHERE I COULD SEE OR HEAR! Wheres someone who should be checking vitals, my progress at wakening, Anything and i layed there for at least 10 or 15 minutes before someone came down that COLD LONESOME HALL. Is that considered proper procedure?????? I was 30 and had not had any anesthesia since i was 3 and my tonsils out. That was really traumatic, we had to be there that morning by 7am, for a scheduled very common surgery through a tiny incision. A few years later i had to have local anesthesia to be checked for IBS. The local injection did not create a problem, but when wakening here it comes again! I've left out the most important part. This has a name, `Cranial Nerve disorders... AND these disorders have a Cause and it has a name! Micro vascular Decompression
http://www.neuroscience.newstjohns.org/Approach.aspx?id=226 I don't have anything to say except Thank you Lord for showing it at the Perfect time and please have the drs that are Right for my very fragile emotions now, Fragile??? and at its worst around the ones i care the most for, Any slight Hint of rejection at this point be it real or perceived just tears my heart out ! People tend to give advice on things they know absolutely Nothing about. It hurts terribly and i know i cannot confide in them. Lord Please do not tell me anything else that might be wrong, just let the drs know. I really thought, well... if there;s anything to it they would surely tell me! NOT! If you have any problems no matter how seemingly small, Always get your medical records Every six months -read them, look up the meaning of works you do not know and you'll know just how well you are being cared for.
Wishing You`
Love, Long Life and LIVE! ~Cj