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First Giving? The Possibility to Make This Cause Known FAR exceed what i do alone...!

What is Firstgiving? from Firstgiving on Vimeo.

`1 in 5 people due to autopsys have pituitary tumors.`

I enjoy wire wrapping beads, pendants, a little of just about anything. Everyone especially seems to enjoy the bookmarks, Actually i enjoy making the pieces used to make jewelry more than a whole piece :). Accent beads, charms, anything someone would like to add to their jewelry yet do not have time to or do not care about learning how to make those extra's, but like to use them with what they make . I sell some here and there & put into making cards to give out so that you will have all the information needed to be Fully Aware of these tumors.

The Truth verses Many well meaning but unqulified in the public and medical community can determine life or death determining any medical attention you may need or get. I know all to well i'm treading on controversal ground, but with what i've experienced concerning medical advice, the 2 years and hundreds of hours of research, flew Twice to a Duke dr. in NC, and have been in 4 states altogether, Please Know, i do Not sit here and rehash this because i enjoy it. Knowledge is power and if One person did Not have to walk down this 7 yr journey as i have but could go right to the correct doctor, rule out these tumors, along With having all endoctrinal issues ruled out or either went to the right doctor with `Knowledge` of this & Open to treatment. "Before" your whole body has been affected; I'll shout it from the rooftops! The truth for me is, If i never had to speak of it again it would be a Joy!

With Any health issue, Please do your own research, do not take anyone's advice until you are satisfied it is correct. (Do not take my advice, search for yourself!) Many people are misdiagnosed, constantly finding themselves in the Psy. unit and on so many meds for Years, yet still wondering why nothing works & still yet changing meds. Think twice friends, I've Been down that road, & thats been over 24 yrs ago. Its a much different game now, beware of Anyone, Dr. Nurse, etc...who says they diagnos you as this or that within the first visit! (the going diagnosis now is Bi-Polar!) I hope you remember that, i know bi-polar when i see it & when i Don't. Be Very aware if you go to an ER for something Other than to admit yourself to a psy. unit and someone trys to get you on their psy. floor!!! This is Not proper protocol, Nor is anything other than a Dr. asking you if you think about hurting yourself or someone else, and do you think you need to stay with us a few days or want to try going home??? This is Without Any feeling of them wanting you to or not. I've got a `chilling` story concerning this during an ER visit in March 2010 with heart palpitations that could have turned deadly had i taken this advice. Its posted in one of my posts below. There's a very good article out about Psy. issues and Medical issues concerning medical problems overlooked as being 'only' psychological. Never take a psy. "Diagnosis" before having your thyroid checked and all endroctrinal issue's. What are your syptoms first? Do a quick search online and see Other medical issues that have the same symptoms.

I'm considering making a First Giving Fundraising Page for the `Pituitary Network Association` as they Are Non Profit. They also have been my main source of information in the past years. They started in 1992. That Really hits home just How Little the public & Medical Field know about these tumors. So many have some very Major health issues including myself even though the drs. and specialist will deny it to the end.

My life has been changed so drastically that i do not remember what `Normal` was like. But, i do have an advantage, God lets Nothing happen concerning myself that is not to bring `GOOD` out of Pain. And for that i am so Very thankful!

Note- I tend to repeat myself Alot now, so please overlook it, many times even re-reading i may not catch something written more than once. Some posts just will not make much sense, and looks like i'm just all over the place from one thought to another then back again. This is just Part of it! :)

To Support The `PITUITARY NETWORK ASSOCIATION` directly please go to their website. http://www.pituitary.org/. this is also where i found the best and most complete info in words understandable to the layperson. with Love and the blessings of God` Cj

Tuesday, March 2, 2010

No Hosp. Stay

this is very common so ---Short version,
they cant See the heart palp, nurse from Psy ward comes, the usual is this- only make sure you do not want to hurt self, others, ask few questions, then leave without asking you to admit yourself. ( unless you have a need to)
nurse there over two hours trying to Convince me to admit, --->NEVER GIVE ANY BACKGROUND TO THEM CONCERNING HISTORY OF ANXIETY NOT EVEN A HINT IF YOU ARE STABLE and. mentally well enough to go home!
They cant see whatever they think they want to diaganose you with either but are quick to do it. this is my first experience with what i saw as badgering, going as far as to try and psycologically decieve me, very much bordering on getting one admitted in a hosptial for reasons NOT concerning the patient who DOES have major life threatening issues, that could Easily lead to Devestating consequences!
she at the last hour tried one more tatic to get me there. 
Your Symptoms are coming from your ........ What She had Diagnosed me as,mind you she is Not a Psychiatrist, due to my stupidity in telling her about a stay over 20 years ago due to excesivie stress causing high anxiety. Anxiety was and still is my diagnosis.
I was quiet but thinking to myself, this is the most outrageous thing i've come across, lying to me-- concerning something that would determine the outcome of my LIFE or No life!
I KNOW the lingo, i've studied it, its old hat, i do not believe anything i'm told that is of importance concerning Life, without researching for MYself!
when i realized this is Not the norm, there's more going on here and its not for My benefit; i withheld some info from her that she Had to have to base this diagnosis on so to  intentionally  trick her up and get her to back off.
That is when she changed it to her diagnosis was were my symptoms (of 3 or more years) were coming from. never once did i let on to her i knew what she was doing, if someone uses the same phrase, word, enough, repeating it within a short period of time say.. an hour. They are using an old psychology trick that if something is heard Enough times, especially if you are Tired, Stressed, under any circumstances that may make you even Somewhat Vunerable,
as maybe needing a very long needed break and someone to just take over all the responsibilities and let you rest, Any need to give any control in any form OR fashion; YOU are very much at risk for simple Cult Mentality and How they draw people to them, Then its how the KEEP them.
Never i have i seen this done in an ER room nor Heard of such a thing happening.
take my word for it, they are not playing. This place wanted to fill a 14 bed floor that had only 6 people by making me the 7th. Its MONEY.

Get online, read the new bill being passed in April concerning mental health.

I've got a combination or either or, hyperthryoidism, Graves Disease, addrenal issues, cortisol issues all this works together. MY OBSERVATIONS FROM HUNDREDS OF HOURS OF RESEARCH! ALSO FROM `GENTLY` LEADING AN ENDOCRINOLOGIST IN RALEIGH NC AT DUKE TO DO A SALAVIA TEST-THE MOST ACCURATE TEST- TEST'S AVAILABLE TO DETECT THESE CONDITIONS.
I also have pituitary tumors. Small (as of last years mri) mm. tumors. Do NOT
let any specialist convince you they are of NO importance!
The first of this i knew about was in 04 during a mamagram. It was the most painful i'd ever had and almost passed out. At the hardest point of the squeezing of the breast, milk came out and i mean it Really did! I had Never seen anything like that and terrified! i've never been pregnant either.
NOTE THIS!  i asked, is this normal for my age???? she said, yes, pretty much, we do see this. This Aught to ring a bell... are you thinking about this?
then this should tell you........
when i saw the dr a lady doctor with Duke, she said as soon as i walked in, i see you had an issue with prolactoma, lets have an mri of your pituitary gland to see if maybe there might be a little tumor there, not to worry they are 99.9 percent benign. Non cancerous.
1. The lady that did my mamagram said it was not that unusual to see this!
2. Have you Ever heard of this condition????????????

OK... 1 in 5 PEOPLE HAVE PITUITARY TUMORS CAUSING SOME KIND OF TROUBLE, AND DO NOT KNOW IT UNTIL THEY HAVE CUSHINGS DISEASE, ADDISONS DISEASE, THYROID PROBLEMS, ADDRENAL FATIGUE-FALUIRE AND ADRENAL GLANDS ARE REMOVED, I COULD GO ON AND ON!

3. IF YOU START THIS PROCESS, YOU `WILL` SEE MANY ENDO DOCTORS BEFORE EITHER YOU GIVE UP, AND THAT IS NOT AN OPTION. OR... YOU TAKE CHARGE OF YOUR OWN HEALTH CARE AND LEARN EVERYTHING AND MUCH MORE THAN THESE DOCTORS ARE TAUGHT ABOUT THIS.

4.WHY?  YOU WILL HEAR THIS OVER AND OVER AND OVER UNTIL YOU EITHER BELEIVE IT OR ARE DETERMINED TO KNOW AS MUCH AND MOST LIKELY MORE THAN THE ENDO SPECIALIST TELLING YOU, THERE IS NOTHING TO WORRY ABOUT, COME BACK IN 6 MONTHS, A YEAR AND HAVE ANOTHER MRI! IF YOU HAVE SYPTOMS AS SEVERE AS I DO, HOUSEBOUND, YOU WILL NOT BELIEVE THIS, NOR STOP! THEY SAY, THESE TUMORS ARE NON SECRETEING (SP) NOT ACTIVE MEANING.
IF SO, WHY DID THE PRESENCE OF BREAST MILK CAUSE A VERY WELL TRAINED DOCTOR AND NOT EVEN IN THIS FIELD, THINK PITUITARY GLAND-TUMOR???????? 
THEN GO ON TO FIND A TINY 2MM TUMOR! NOT MUCH BIGGER THAN THE HEAD OF A STRAIGHT PIN. 
```YOU CANNOT TELL ME THEY ARE NOT ACTIVE!``` MINE PROVED THAT TO BE WRONG!``

I SEE THE SECOND ENDO (BEING THE FIRST IN KY)I TOMORROW, WED. The reason i'm going back to him, i remember two things he said that none of the 6 ot 7 others did, and they all contridicted each other, i'm sure would be somewhat embarrassed if they could hear each other telling entirely different excuses, even one argueing the point that i could Not have had diabetes as child age 4-6 and not have it now. geez........ i dont know about where you live, but these particular doctors wear you out with some of the stupidist statements you'll ever hear. Some of this is just plain common sense, but be Very care ful before you let one know you have studied up and have knowledge of this issue, you have to see if they are able to take it and i've found only 1 that could. that was where i suggested the salavia test, (wish i knew it needed to be tested 4 times a day instead of once). it was the salavia test that told him everything he needed to know..

i'm So sick of talking about this issue, but i'm determined to make aware as many as possible about this.  Do you know, if you are on medicare medicade, you could NOT have this MRI i will be having! Not in this state, not in NC with this new healthcare going through! You also better be checking to see what meds they are going to stop paying for! My mother is going through this right now in NC. She does not even Know if her doctor will see her the next time, only certian ones will be paid to even see Mostly our Elderly!

so much for the short version!

God Bless, stay informed!
Cj

Sunday, February 21, 2010

UPDATE SINCE LAST POST! PLEASE GET INFORMED, UPDATE BY TONIGHT

SINCE LAST [POST``` WILL UPDATE BY TONIGHT! PLEASE GET INFORMED`

The last update did not take so this is it! I'm going in the hospital in the next few hours as a last effort in this area. Lord willing this will work, but if not, He has somewhere better. It will probabbly be one from http://www.pituitary.org/

My dad is at home dying of cancer, it came back Very suddenly, please keep him, my step-mom and the rest of the family in NC in prayer. Also their church is a tower for them, they lack for nothing.
God is the only Anchor during the storms in My life! The only One true For sure Cannot Lie, will be there, never sleep or slumbers.

Love and blessings,
Cj

I'll post only once or twice a week until some kind of treatment starts. The treatment will be harmonal to begin with i suppose disregarding the tumors. I was told i would have to be on harmones the rest of my life. Thats just fine by me, Quality is more important than Quantity if all i'm doing is lying on the couch trying to stay so still as it helps keep the hearth palpitations a little calmer. This last time i laid on the couch 4 days and nights, getting up Only when having too.
I write this in hopes that if only `ONE` person comes along and reads this and can relate, and gets Help, Its worth it! I sure don't enjoy sitting here doing it.
Until i get some help here, being online makes me nervous, so i try to stay away from it.
I'll be seeing the OBGYN who hesitantly said he would see me for treatment of the ovarian failure and start harmones on the Oct. 20th!
Any and all prayers are Much appreciated for this Doctor & everyone concerned!
`With Love`
Cj

Sunday, October 4, 2009

`Ovarian Failure`

BTW Not all post are going to be serious! :o)

Diagnosis- Ovarian Failure. And when did this start? I'm 51. The first tumor found in 03 was lactating just as these are and not much; i was told it kicked me into Early Menapause.  At first i thought" Ok,,, Menapause. Whats New! Being Mindful now i've been researching these tumors over a year. My experience with doctors has Not been the best and a couple of times almost deadly from PSY. perscriptions, they were trying to help the heart palpitations but there were some severe reactions.

So my first thought, i'm not researching anymore...at all! I can only look up these things no more than 15 minutes; for me its just very  stressful. But my curiousity got the best of me.

There's more to ovarian failure than menapause. Looking back, i can see a timeline between Panic Disorder in early to mid 20's to what most likely was Ovarian Failure around 1997. I'd not had a panic attack since 1987. They started slowly and progressively got worse. So who do you get sent to??? Another Psy. More Meds, i've probabbly been on every psychiatric med available, None stopped the heart palpitations; yet i knew others that the same meds helped. 

The palpitations got so bad in 1993, they were nonstop 24/7 for 7 weeks. We made a major life decission and moved to NC, where i came from thinking being around family would help. It didn't. 2 1/2 years latter we moved back to ky. 

The hotflashes turning into all day all night 7 days a week and the palpitations were doing the same thing at the same time. I see a major timeline here. 

This is Ovarian Failure  Please read it! Knowledge goes along way in  taking charge of your Own healthcare. And it all started from the Pituitary Tumor. You may already be dealing with these tumors, and know much more than i ever will, but my goal is to make everyone i possibly can `AWARE` of something they have never heard before. No one should have to suffer like this being basically homebound due to what doctors Dont know, they don't communicate with each other; at least where i live.

I don't know what  i'll hear on the 20th from the obgyn concerning `Treatment` the endo at Duke sent him, but i do have an appointment tomorrow with my MD, he has the records and i'm going to ask what the treatment is. It should be (hopefully) harmonal. QUALITY OF LIFE IS MUCH MORE IMPORTANT TO ME THAN QUANTITY.
Only a FEW doctors understand that.

When i can function enougth to persue getting these things removed, i'm going to. They have already caused enough trouble and years of wondering where the person who lived inside me went.  The risk may outway the outcome but at this point thats something i'm willing to take.  God can heal these tumors, or he can work through a Qualified doctor who specializes in this . After being in 3 states pituitary.org lists University of Kentucky and a few hospitals in Virginia.

Ok, been on here too long, but have a GREAT week and may God Bless You!

Love `Cj