Search This Blog

First Giving? The Possibility to Make This Cause Known FAR exceed what i do alone...!

What is Firstgiving? from Firstgiving on Vimeo.

`1 in 5 people due to autopsys have pituitary tumors.`

I enjoy wire wrapping beads, pendants, a little of just about anything. Everyone especially seems to enjoy the bookmarks, Actually i enjoy making the pieces used to make jewelry more than a whole piece :). Accent beads, charms, anything someone would like to add to their jewelry yet do not have time to or do not care about learning how to make those extra's, but like to use them with what they make . I sell some here and there & put into making cards to give out so that you will have all the information needed to be Fully Aware of these tumors.

The Truth verses Many well meaning but unqulified in the public and medical community can determine life or death determining any medical attention you may need or get. I know all to well i'm treading on controversal ground, but with what i've experienced concerning medical advice, the 2 years and hundreds of hours of research, flew Twice to a Duke dr. in NC, and have been in 4 states altogether, Please Know, i do Not sit here and rehash this because i enjoy it. Knowledge is power and if One person did Not have to walk down this 7 yr journey as i have but could go right to the correct doctor, rule out these tumors, along With having all endoctrinal issues ruled out or either went to the right doctor with `Knowledge` of this & Open to treatment. "Before" your whole body has been affected; I'll shout it from the rooftops! The truth for me is, If i never had to speak of it again it would be a Joy!

With Any health issue, Please do your own research, do not take anyone's advice until you are satisfied it is correct. (Do not take my advice, search for yourself!) Many people are misdiagnosed, constantly finding themselves in the Psy. unit and on so many meds for Years, yet still wondering why nothing works & still yet changing meds. Think twice friends, I've Been down that road, & thats been over 24 yrs ago. Its a much different game now, beware of Anyone, Dr. Nurse, etc...who says they diagnos you as this or that within the first visit! (the going diagnosis now is Bi-Polar!) I hope you remember that, i know bi-polar when i see it & when i Don't. Be Very aware if you go to an ER for something Other than to admit yourself to a psy. unit and someone trys to get you on their psy. floor!!! This is Not proper protocol, Nor is anything other than a Dr. asking you if you think about hurting yourself or someone else, and do you think you need to stay with us a few days or want to try going home??? This is Without Any feeling of them wanting you to or not. I've got a `chilling` story concerning this during an ER visit in March 2010 with heart palpitations that could have turned deadly had i taken this advice. Its posted in one of my posts below. There's a very good article out about Psy. issues and Medical issues concerning medical problems overlooked as being 'only' psychological. Never take a psy. "Diagnosis" before having your thyroid checked and all endroctrinal issue's. What are your syptoms first? Do a quick search online and see Other medical issues that have the same symptoms.

I'm considering making a First Giving Fundraising Page for the `Pituitary Network Association` as they Are Non Profit. They also have been my main source of information in the past years. They started in 1992. That Really hits home just How Little the public & Medical Field know about these tumors. So many have some very Major health issues including myself even though the drs. and specialist will deny it to the end.

My life has been changed so drastically that i do not remember what `Normal` was like. But, i do have an advantage, God lets Nothing happen concerning myself that is not to bring `GOOD` out of Pain. And for that i am so Very thankful!

Note- I tend to repeat myself Alot now, so please overlook it, many times even re-reading i may not catch something written more than once. Some posts just will not make much sense, and looks like i'm just all over the place from one thought to another then back again. This is just Part of it! :)

To Support The `PITUITARY NETWORK ASSOCIATION` directly please go to their website. http://www.pituitary.org/. this is also where i found the best and most complete info in words understandable to the layperson. with Love and the blessings of God` Cj

Showing posts with label Brain Tumors. Show all posts
Showing posts with label Brain Tumors. Show all posts

Saturday, June 26, 2010

Why Do I have a Blog & Not Write in It ???

Here it is almost 8pm Sat. night, still light outside and WHY am i sitting at the computer????? I assure you i sit here with a dumb look comtemplating this question. OK! I'll go outside until it gets dark, and THEN it's time to Actually do some updating. :o) FYI- soon you Will figure out why i shy from this thing!

11:43pm
  It's obvious i've got a story to tell by the name of the blog. Who am i kidding other than myself. And Honestly... sitting here makes my heart palpitations unbearable; so i avoid anything as long as possible dealing with this subject.
Why? If i had not spent hundreds of hours researching each new symptom as it came on, there's no telling what institution i might be in today. That is a fact due to an ER visit by one who thought she was a master manipulator in Psy. If i had not know the ropes That medical field used 25 years ago, she would have caught a fish and by giving her Own diagnosis in less than 5 minutes that turned into 2 hours of every trick in the book, Psy. and the Bible; using even what i call the Cult Syndrome! It sure has changed and i feel for so many who are being fed drugs that do Not work, get no better just more drugged, and think; this is it, this is the way it will be forever....(why) BECAUSE SOMEBODY TOLD HER, HIM, YOUNG, OLD, who believes someone who's supposed to be looking out for their Good, really is! That was ME until 2007!
That experience in the ER in March was unlike anything i've Ever seen, much Less what i know to be proper protocol when going to the ER for Heart palpitations they want to fill their psy. beds!  I've done alot of studying, and it has very likely saved my life! What I didn't tell her, caught her up on her notion she would badger me and even go as far as to tell me looking right straight in my eyes, my symptoms had nothing to do with the endoctrine issues, but i WAS Bi-Polar! I HOPE YOU ARE HEARING THIS, YOUR LIFE MAY DEPEND ON TAKING CHARGE OF YOUR OWN MEDICAL CARE OR SOMEONE YOU LOVE! 
I played this woman and told her some old psy. meds i had at home still i had been off of for along time. She said, well,  you Better take them! This was After she saw she was not getting me somewhere i did not need to be.  Knowing my bible this was So Obvious i was releived. Does this sound familiar????
The last thing she said before about taking the meds, was this...
ONE day you are going to THINK YOU ARE God and fly off a building! 


"The devil took Him up to the Holy City, and set Him on a pinacle of the Temple. AND said to Him..IF you are the Son of God Cast (Jump) (Leap) yourselfDown: FOR it is Written...He shall give His angels charge over you and in thier hands they will hold you up, Lest you at Any time dash your foot against a stone" (Pain,death,you get the point here) Jesus said to him... IT IS Written Again, Thou Shalt Not tempt the Lord thy God." Matthew 4:5-7

The last thing i told that woman and eye to eye, Lady, thats One thing I'll Never  do is think i'm God!

I know this sounds So ludicrous, i dont know that i wouldn't be doubting it myself if not for my hubby being there all 8 hours. I left there with once again,,, deceptive instructions my hubby quickly found, and something they FAiled to tell me or to pass on to my regular drs... All ekg's have been fine until now, This one said "Irregular Heartbeat". That can mean many things, but in this case, its ongoing symptoms that attack they body when no one thinks your symptoms are worth looking into past a little bloodwork.

There's a story here to tell, i'm so far behind i'll never catch up. Thats ok. I'll post what i can, and it will be here for whoever may need it, and that might just be me.

~~~When you pray tonight...Thank God you do not plan every move you make, having to think how to get to bed, not to wake up with your heart beating out of your chest, put feet on the floor, and it goes like that all day and starts over. I had No idea what suffering was physically or mentally until this, living on the streets of a big city at 16; Nothing compared to surviving this. What am i learning? IT's PRICELESS! NOTHING is so important to get an attitude about, stress over hitting the garage door (in a rental recall car at that!) While your dad is in the house dying. And gee.... thank goodness it missed hitting the car in the garage by an inch.
I'm sorry folks, but to me that was just everyday stress compared to the past 3 years, and i just had really no reaction. Its a thing, can be fixed. Had the circumstances been different maybe  i could not have been fixed. Dads gone now, April 5,we paid for the door, i could not go back for his funeral even if i tried my body would not have given the permission. Still I cannot Afford to grieve, when you know what your body can take, how much  and how long, and follow that still small voice inside, you won't be led wrong.

When i write, i'm journaling my thoughts as i did for 10 years on paper. I still start on paper and now need to move it to the laptop, much faster and easier on the hands! The story is too long, but i cant stop until i know i'm done. I cannot Start until God gives me the courage to face this beast of a machine i used to enjoy, And will again!
Shalom `peace`
with love
Cj

Friday, October 2, 2009

Even Want To Give Up? DON'T!

I don't know about you but after a huge pitfall, hearing....Wait and See, it takes me a few days to pull it back together. It's more than i can soak in. BUT...The God of the Mountiantops He is also the God of the Valleys! I take Much comfort in that! He LOVES ME! Unconditional regardless of my emotions, fears, feeling like a total different person than when I came to know HIM! Sometimes its hard when harmones are flying all over the place to realize that, but you know what, it dosen't make it any less True! Feelings are so untrustworthy. All i have to do is `look back` and see all the valleys He has brought me through and been a much wiser person and very humbled. BUT...i've always been able to help someone else who is going through that very valley.
We finally did get an obgyn to see me on the 20th/ harmonal treatment. I'll not give up on finding someone who will remove the tumors before they keep growing, causing more complications.
PLEASE edgucate yourself on this topic!
Pituitary Network Association

Forum With Loads of Info
MedHelp

Love`Cj

Tuesday, September 29, 2009

Numb After Fridays Edno visit-But Still New Things coming At Me*

IT sometimes takes me a few days to get over yet another bad experience with a doctor. Endo. The one at Duke said i needed treatment; this one says not.

While making an appointment to see my MD, i asked to speak to his nurse. Hope you are sitting down... She told me she was from Dallas and all she did was assist surgeons in removing Pituitary Tumors! ITs worth a try. I'm going to call the doctors she gave me there and see if they will look at 3 mri's and Dukes (treatment) and let me know if its worth me flying there or somewhere closer to home they would recommend. I cant fly that far Unless is a for sure thing they think they need to be removed.

Yesterday i called a well know and suggested by my neighbeor who see's this OBGYN for harmones, i told them about he tumors, then she called me back, wanting to see all my medical records.

Is this going to be the catch 22??? HE is known for compassion and quality over quantity of life and will give harmones. IF he needs to see med records before deciding to see me or not, its going to be because its probabbly not in his best interset to give harmones not knowing what the tumors are doing or going to do. My hubby said, you shouldn't have told her. I'm not Making anymore trips hours away only to be told no. They need to know upfront.


IF there's nothing to these tumors, (and i know better) then why do they keep taking bloodwork to see if you have the growth harmone active etc  etc etc???? Just a little commone sense. Oh...by the way, the nurse in the endo on fri. said "dont worry about it, theres nothing to them. We see them ALL THE TIME!  Yeah, i bet they do since 1 in 5 have them.

I look back over my writing and i hope you can sift through it. i'm not in a hurry, maybe my mind goes faster than my fingers.:)

I know very few will read this, so i basically am talking to myself and keeping up with this as i can. Only am i doing this online so that if someone comes across it, it may help them. I wouldn't wish this along with menapause on my worst enemy.

Keeping the Faith!
Cj

Tuesday, September 15, 2009

Pituitary Tumors, How Many Have Suffered For Years Misdiagnosed?

PLEASE TAKE A FEW MINUTES AND MAKE YOURSELF `AWARE` 1 IN 5 PEOPLE HAVE A PITUITARY TUMOR.

 I AM ONE OF THEM.

Note-(1 IN 4 WOMEN HAVE BREAST CANCER.) THESE TUMORS ARE SOMEWHAT A NEW FIELD OF MEDICINE. Or is it Really! I'm not so convinced right now. I'D NEVER HEARD OF THEM BEFORE, BUT THEY ARE NOT TO BE PLAYED AROUND WITH ANYMORE THAN BREAST CANCER. 99.9% OF THEM ARE NON CANCEROUS, BUT COULD THERE BE A LINK BETWEEN THESE TWO??? HARMONES AFFECT EVERY PART OF YOUR BODY.
FOR YEARS PEOPLE SPEND A LIFETIME GOING FROM DOCTOR TO DOCTOR SUFFERING AND EITHER ARE MISDIAGNOSED OR ONLY TO BE SENT TO A PSYCHIATRIST. THEY WILL TELL YOU THERE IS NOTHING WRONG WITH YOU, ITS ALL IN YOUR HEAD. `THAT PART IS RIGHT!` THE TUMORS IN MY HEAD ARE REAL AND CAUSING ALL KINDS OF SYMPTOMS LEAVING ME HOUSEBOUND. BUT NOT FOR LONG. I'VE DONE MY RESEARCH AND WILL BE GETTING TREATMENT WITHIN A COUPLE OF WEEKS. THIS HAS GONE ON FOR 3 YEARS, I'M EXHAUSTED.

IF 1 IN 5 PEOPLE HAVE THESE TUMORS, WHY HAVE WE NEVER HEARD OF THEM? THIS HAS BEEN PROVEN THROUGH AUTOPSYS. DOCTORS `
SUPPOSEDLY`ARE NOT TAUGHT ABOUT THEM FOR THE MOST PART.
I'VE BEEN IN 3 STATES LOOKING FOR THE RIGHT KIND OF HELP. IT LOOKS LIKE DUKE HAS A THUMBS UP ON THIS. THEY DIAGNOSED MY FIRST TUMOR AROUND 2004.
I WILL DO EVERYTHING I CAN POSSIBLY DO TO PASS ON PITUITARY AWARENESS UNTIL THE SILVER RIBBON IS AS MUCH A PART OF AWARENESS FOR THESE TUMORS AS IS THE
PINK RIBBON IS TO BREAST CANCER.
BY READING THIS YOU `MAY` SAVE A LIFE, AND IT COULD BE YOUR OWN!

IF YOU HAVE THYROID PROBLEMS. GET AN MRI!YOU WIL FIND SYMPTOMS AT `THE PITUITARY NETWORK ASSOCIATION` WEBSITE LINK BELOW.
WHAT IF WHEN ONLY A FEW PEOPLE FIRST BECAME AWARE OF BREAST CANCER THEY DID NOTHING TO INFORM OTHERS??? ITS GOT TO START SOMEWHERE!
PLEASE READ THE LINKS BELOW,ESPECIALLY "SHORT BUT POWERFUL INFORMATION". IT WILL TAKE ONLY A FEW MINUTES AND THEN PASS IT ON TO YOUR FRIENDS AND FAMILY. (THIS IS A REAL EYE OPENER)  
ASK THEM TO KEEP IT GOING UNTIL PITUITARY TUMORS ARE RECOGNIZED AS SERIOUS OF A DANGER TO YOUR LIFE AS BREAST CANCER IS.

***Think about this. After a certian age women are told to have a mamagram every year. Now i'm considering 1 in every 4 women have breast cancer and this is why. That being the case, should not everyone at Least by 35 or 40 have an MRI every 2 years until menapause??? It just makes good common sense to me!***
***SHORT BUT POWERFUL INFORMATION***
THE MAIN SITE
http://www.pituitary.org/

Please feel free to contact me.

I am just about positive i will know this week what kind of treatment will be used and if i have to fly to NC. This blog is also where i'll post my treatment,so check back when you can! I love getting messages :). I did re-read this and edit as best i could. My writing ability for someone to be able to follow is greatly lacking right now. Just overlook what dosent make sense and know i tried :)
With Love,`Cj
pituitarytumor_awareness@yahoo.com
May the Lord Bless You and Keep You!
Cj